There Is More To Opportunity

My neck is so stiff. Everywhere I turn I hear the word OPPORTUNITY. WHIPLASH! The strange part about the word OPPORTUNITY it doesn’t appear to carry the same meaning. Are you ready to ROLL THIS BABY OUT?

POSITIVE DIRECTION OF OPPORTUNITY:

O-Opportunity is TIME used wisely. Whether or not the TIME was short or long you
did not miss out.
P-Purpose was to open the door for everyone to have and invest in affordable
healthcare and not just one state.
P-People are the No.1 Priority over Profit.
O-Obligation and determination always rides on the backs of those who care__
OBAMACARE.
R-Relying on the law of the land to FIX the health care needs of the people
in waiting who deserves the right to choice, quality of life, and the ex-
tension of whatever livable TIME left.
T-Tenacity and Tolerance strike the cord of Frustration. Who showed
determination, understanding, and acceptance? The one who is FRUSTRATED.
U-Universal Health Care for all and no more junk policies. When you are tattered
torn and sitting behind the medical chart or on the FLIP SIDE OF THE CHART you
suddenly realize the policy you have paid years and years ain’t worth JACK
SH… Here comes the static. You are not at fault. The insurance companies
tell you it could have been AVOIDED, it is a LUXURY DISEASE, hell you are not
covered. OBAMACARE/AFFORDABLE CARE ACT will open the door and give you a rain-
coat, umbrella, and protective boots for affordable care. Illness is not a
LUXURY and when you DIE you do not go on HIATUS.
N-Negotiating and advocating for your own LIFE instead of the insurance company
determining whether you will LIVE or DIE. I would like my DOCTOR to have a
say. He would be the one performing the surgery. Not the D. Insurance
Company. Leave it to the INSURANCE COMPANIES and I would arrive DOA.
I-Intelligence weighs in for the people to determine who wants what is best for
their LIFE.
T-Truth was spoken and a hard pill to swallow. Trust is just around the corner.
Y-You think I’m not going down to the wire using Y. Walt Disney did it with
Mickey Mouse. MIC-see you real soon KEY-Why because it only takes 1 person
to show another human life they care. YES WE CAN and Y-YES he did make
OBAMACARE/AFFORDABLE HEALTH CARE ACT the law of the land. It is TIME for the
Healing to begin and the DISCRIMINATION TO END. ENDA 🙂

NEGATIVE DIRECTION OF OPPORTUNITY

O-Opposition from the Opponent. NO is their answer. Stripping away all rights
and dignity of a LIFE. What is left? Downward decline spun into depression.
Death of the spirit, heart, and mental well-being. Deprivation of HEALTH then
comes DEATH.
P-Pessimism is a true characteristic of the Opponent. Problems are Created.
There is no room for HOPE.
P-Profit is the No.1 Priority. Our children/adults can starve. The health of our
nation lays the groundwork for the people to be encased in their tombs. They
will not get into the trenches with the people for their best interest. It is
digging a grave for the people and using Poor Judgement to seal the people’s
faith. Who feels threatens? Who is afraid the plan will succeed?
O-Obstruction by the OLIGARCHY CREW will set our nation back. It will diminish
the chance for moving the people and our nation FORWARD.
R-Racism has no place in governing. REALLY! Stop with DELUSIONS. It is TIME for
INCLUSION.
T-Tainted the lines of information to make what is REAL to appear FALSE and
FALSE to appear REAL. Turning people against each other every chance the
moment arises to induce mistrust and creating an atmosphere of FEAR.
U-Unilateral Decision or shall we call it Emergency Manager Law. In the
Corporate World it is SENSE OF URGENCY. You weren’t quick enough on the draw
so we made the decision for you. RIGHT! What was the rush? What is the big
fuss? You still don’t have a plan. You call that a plan? UNDERTAKERS!
N-NO! That is all we got for you. NOTHING, NOTTA, NEGATIVE!
I-Ignorant/Incompetent and refuse to hear you out or change. Indentured Servants
are who they attempt to shape your personality into.
T-Task Masters who are high dollar bill rollers paid to do nothing. Not even
pass a bill.
Y-You know why the crazies took the OPPORTUNITY to ROLL OUT in this manner.
Y (Why) for one TERM ONLY. Y (WHY) to OBSTRUCT, DESTROY, and to never let
the world spin on its axles. Everything on this planet must revolve around a
MISSED OPPORTUNITY. TIME, whether it was short or long, was INTENTIONALLY not
used WISELY.

On the FLIP SIDE OF THE CHART, FUMBLES reads differently.

F-Full steam ahead. FORWARD!
U-United WE Stand and you know what is going to happen to the DIVIDED CREW’S A.
M-Mobilize and get them DEMS MOTIVATED.
B-BELIEVE you-ME the job will get done. All In TIME!
L-Looking FORWARD to LIVING with and SURVIVING from the PRE-EXISTING CONDITION.
DYING because I did not take the OPPORTUNITY would not be good. On my Way!
E-Evil is not having a Plan, nor a solution, and creating Problems. Evil is
hesitation, desperation, and no determination to FIX the physical and mental
conditions of We The People and The Nation. Flip EVIL and there you go. What! LIVE! Somebody is DYSLEXIC!

The People want to LIVE. Thank you for caring.
FUMBLE the ball! You learned the texture of the ball, its weight, size, shape, color and you learned why you are still so determined to hold onto the ball. INTEGRATION and the greatest link to the people. Who left the Ball in the corner? What do the Republicans, GOP, and Tea Party, know other than No? There you go. Who is not connected?

Getting Zach on the Right Track

Scene:  Sparky SPD (representing sensory processing disorder) and Nicky NLD (representing nonverbal learning disability) visit OWN Studio to help a friend get on the DSM5.  Zach is having extreme behavioral problems. Sparky SPD and Nicky NLD came to visit Oprah to see how they can help an old friend out. The conversation takes place in the green room and Oprah has stepped out for a studio break.

Nicky NLD:

Sparky sit down.  Stop touching everything. You are going to get us thrown out of the studio. I knew when I came here with you it was a bad idea. What did you have to eat?  You are all jacked up. Did you eat anything with sugar in it?  Put that down. You are on sensory overload.  Don’t make me call 1-800-Jesus Christ on you.

Sparky SPD:

Chill Nicky, Oprah won’t mind if we help ourselves and take a few souvenirs.

Nicky NLD:

Oprah has a deadline to meet and we are here to help get sensory processing disorder on the list.

Sparky SPD:

You are not on the list either.  As I recall you are not on the American Psychiatric Association (APA) list nor the International Classification of Diseases (ICD) list.  Are you on the Center for Disease Control for prevention list?

Nicky NLD:

No, I am not on any of those lists. Isolation is terrible and no recognition is even worse.  There is no validation and this could hang us out to dry. The APA is trying to throw Aspergers off the list and merge it with PDD-NOS. You know that diagnosis is just not enough of anything to rate being on the list.  If Aspergers vanishes we will not make the DSM5.

Sparky SPD:

Are you serious?

Nicky NLD:

I’m way more serious than Sally Savant “splinter skills”.

Sparky SPD:

What are splinter skills?

Nicky NLD:

Splinter skills are very unique skills that a person has that are totally unrelated to their life but they do them exceptionally well. Savants are noted for these skills. There are so many skills that savants can’t achieve but they should always be recognized and respected for what they can do. No one should ever take any credit away from a person who can achieve the smallest tasks. It messes with a persons self-esteem and self-confidence. For many years, not making the list has done the same to me. I am treated totally different from state agencies, insurance companies, schools and their districts.

Sparky NLD:

Nicky, I was reading your tweets and I did not know we had all that in common.

Nicky NLD:

I spelled it out. As long as people point it out or spell it out for me I don’t get so frustrated.  It was about 30 tweets. I gave brief definitions of some of the disorders. I did not want to cause confusion because a few of the disorders get mixed up. Sparky we share and have difficulty in the following areas: hypersensitivity, apraxia, dysgraphia, fine motor, severe coordination, hypotonia, developmental delays, developing friendships and relationships (social domain), self-esteem, self-confidence, speech and language development, dyspraxia and our nervous system is wrecked.

Sparky SPD:

Are you sure we don’t have the same Dad? We’ve got so much in common. You know I always liked the song Papa Was A Rolling Stone by the Temptations.

Nicky NLD:

Okay Sparky, shorty by nature, don’t make me mad. People don’t realize that when I get angry it could be for something that happened 2 or 3 days ago. It could be something that happened for 3 or 4 years ago or even longer. The doctors call it a manifestation of one’s behavior. I call it being pissed off for a very long time.

Sparky SPD:

What strategy do you use to keep from going ballistic?

Nicky NLD:

You need to go process with a person that you can trust – like a doctor or a therapist.

Sparky SPD:

I can get pretty angry.

Nicky NLD:

That is the best time to go to your doctor.  They can help level you out by talking it out. If you don’t want to talk you can look at the ceiling. If it is your doctor or therapist you are going to pay them regardless.  You might as well talk.

Sparky SPD:

I need a safe area like you. I use to think that your mom was a decorator. When you told me she put those rooms together to calm you down that was really cool.  I love the fountains, candles and the easy colors she chose to make it like a spa. Why did your mom take the doors off the rooms?

Nicky NLD:

I cannot tell where my body space is.  Removing the doors just kept me from bumping into them. The look on your face was priceless when I told you we were in the closet. You thought it was a music room. You asked me where do I keep my clothes. I told you that we were sitting on them. You didn’t have a clue the benches were storage chest. You know I have trouble with hanging my clothes on clothes hangers. I don’t need to get frustrated.  My family always figures out a way to help me work around something that gives me difficulty. They remind me it is no big deal. They teach me alternative methods by verbalizing and pointing out what it is I need to do. As I practice the skill more I learn it and I’m ready to move on. If you tell me to go clean the room. I need to know exactly where you need me to start. They will leave notes on the computer or a sticky note on top of the computer for me to find my information. It takes a lot of work but my family wants me to be successful without the pressure. They continue to teach because I learn by a step by step method. It is habilitation, not rehabilitation.

Sparky SPD:

Man, your mama acts like she is McGuyver or Inspector Gadget. You know our house is so cluttered and it looks like something out of Rag Magazine. You know my mom doesn’t do well with changes.

Nicky NLD:

Sparky, your mom may need to change to keep your behaviors from triggering. The clutter and having no order in your life could be part of the problem. I’m not trying to place the blame on your mom or your dad. If they don’t know when it is time for them to learn. They have so much hurt, guilt,  fear, and feelings of hopelessness. All this can be changed with empowering themselves with education and learning about sensory processing disorder.

Sparky SPD:

How does your mom manage her feelings?  My parents just seem so beat down by my behavior.

Nicky NLD:

My mom and the rest of my family educate themselves on the material. She said if it is nothing up to date, She would take action, bring the information up to date and create a new format for people to learn. She and the rest of my family understand that I have a neurological disorder with unintentional behaviors. A characteristic of NLD is anosognosia.

Due to the nature of my disability, I do not have the ability to recognize the seriousness of my own problem. So I would see my peers like I view myself, not having a problem. Bottom line Sparky, I can’t put myself in other’s shoes to show compassion, empathy, and support. Don’t be frightened, I have come a very long way. Emotions are hard to teach.

Sparky SPD:

Man, that is deep. So what did your mom do?  I feel like this is a seminar.

Nicky NLD:

My mom was diagnosed with breast cancer. She said every adversity does not have to have an adverse effect. I have a difficult time understanding fear. She said this was a good opportunity to teach fear and other emotions. She stated that people don’t like breaking themselves down to the lowest denominator. It makes them appear weak. She said she wanted the world to know how much they are taking for granted. Their adversity would give them a greater strength  She felt if you could write, spell and read… then do it.  She expressed her fears and pointed out fears of others. I did learn a lot. I still have a long way to go.

Sparky SPD:

It is time for me to make some serious changes and start surrounding myself, with positive people, and those who have my best interest at heart. I have got a lot to learn. If you don’t mind Nicky, do you take medicine?

Nicky NLD:

No, I have several coping skills and strategies that are taught by my family members to reduce the panic, anxiety, depression, and stress. Whenever I decide to go out to dinner or a movie, I go at a time when it is not crowded. I go to a place where there is less noise. I enjoy music. Maybe Zach can read the book Musiophilia by Oliver Sacks.  One of the neuropsychologists gave it to me. It is an excellent book. I tried not to overload myself on social events. I get tired and I rest in a room with white noise and low amber lighting.  Social events I attend there are 3 being the minimum and 5 being the maximum people around.  They are very knowledgeable of my unique abilities. I use scented candles for relaxation (mild scented). When I walk, I take a backpack loaded with books for deep pressure. I have a fanny pack with mints, a stress ball, and clay. If  I get anxious, I return to my safe area. If someone is angry with me it is explained to me that the person may not be ready to talk. I have the same option as that person. I am never placed in competitive sports.

Sparky SPD:

Nicky that is a lot. Will we ever grow out of this?

Nicky NLD:

We don’t grow out of this. We grow up with this. We just have to work harder.

Sparky SPD:

I like that Bose Bluetooth you are wearing. What kind of phone do you have? I got that new droid.

Nicky NLD:

I don’t have a phone.

Sparky SPD:

What!

Nicky NLD:

One day  I was at the mall with my brother and he started complaining about everyone on their cell phone talking to other people.  He was so agitated and began to point out people who had Bluetooth attachments.  I looked at him and asked if he knew if anyone was on the other end talking. You know I process out loud and this attachment would keep me in sync. He took me out to the Bose store and purchased it for me.  I wear it all the time. Everyone looks like me but there is no one on the other end of my Bluetooth.

Sparky SPD:

You are going to have the whole world with phone gear and attachments paranoid.

Nicky NLD:

I wonder how many people are laying down their phone gear and looking at others with phones crazy?

Sparky SPD:

You need to cut that out.  Where did Oprah go?

Nicky NLD:

It’s getting late.

Sparky SPD:

Should we leave her a note or that sweater you have chewed at the sleeve? Why you do that?

Nicky NLD:

Sometimes adults with developmental delays have a tendency to eat non-food items. This is called pica. It is mostly seen in children ages 1-6 and mentally challenged persons.

Sparky SPD:

Alrightee! Let’s leave a message for Zach and his family.

Nicky NLD:

We need to let you know that you are not alone. To his mom and dad hang in there and be strong. It would devastate me if my family gave up on me.

Sparky SPD:

You are right Nicky. I don’t always see eye to eye with my parents. I wouldn’t want to be isolated or rejected by them.

Nicky NLD:

A good book to read with your parents is The Explosive Child by Ross W.Greene Ph.D.: A New Approach for Understanding and Parenting Easily Frustrated, Chronically Inflexible Child. It would be good for you to have an oral motor grocery list. When you become anxious/nervous you will have things to munch and crunch on and non-food items for your body.  Learn about your sensory system which consists of Tactile System (skin,touch), Proprioceptive System (muscles,joints and tendons), Vestibular System (inner ear,balance up/down and left/right), Gustatory System and Oral Motor Input (mouth and tongue),Visual System(eyes) and Olfactory System (nose,smell). Learn what calms your sensory system and what alerts it.

Sparky SPD and Nicky NLD:

We wish you all the luck in the world. We hope this helps.  To the parents of Zach, hang in and don’t give up. You need each other.

Zach quality time with mom and dad reading, listening to music, singing and playing games will help. You need a safe environment with trusted adults and grand guardians. Thirty-two hugs a day might help and you could use a good teacher or a mentor. A national cheerleader could boost your self-esteem. Lots of love and a stable home will shoot you to the moon.

We are rooting for you.