Tag Archives: CDC

Everybody Is On Someones Hit List__ Ah! Sh…..

T. BOBBIE, I told you not to be surprised when you look at the screen and see your name floating around. You are one of the finest educators I have ever known. To this DATE, TIME, and NOW you are a MAJOR PLAYER IN MY LIFE. What! Don’t tell nobody. Hey! You know how I love messing with you. It gives me the feeling when everyone is announcing their accolades and the UNIVERSITIES are probably sitting there thinking, “D…! I hope they don’t tell people they graduate from this school with their IGNORANT A…” BOBBY JINDAL is a road scholar. I wonder what side of the road his brain is sitting on. T. BOBBIE your next saying about me is, “GIRL YOU ARE TOO SILLY.” I am not waiting for something to happen to you to tell you how I feel about you. This is what the majority of people do. They wait too late. I LOVE YOU. You have made some major sacrifices to give to others. It TIME for me to give back to you.

Hell! You are not the NATIONAL HANDOUT SYSTEM. NEWT GINGRICH would say, “YOU ARE THE FOOD STAMP PRESIDENT”. MITT ROMNEY would say, “I would never convince them (the 47%) to vote for me).” Do they expect us to be the GIVERS? Everyone is looking for a handout, free stuff, and trying to buy something like your votes. The GOP has been identified as the TAKERS. Put the locks on the door and don’t let them in. Give yourself credit if you don’t it will be a sin. Take your hard-earned money and buy you something new. I hope you realize you are long overdue. We all know who the RUMP SHAKERS are. They will LIE to you, CRY to you, and BREAK you by far. It’s all good T. BOBBIE. Enjoy your dinner today with the family and make their A… pay for it.

It would be so nice if the POOR had more money knocking at their DOOR. It would be great if the MIDDLE CLASS is not made out to be the CLASS OF THE PAST. To top that off, if the WEALTHIEST could stop being so selfish, take a TAX CUT with their greedy BUTTS, and close down the LOOPHOLES. Show WE THE PEOPLE and OUR NATION you do have a SOUL. So T. BOBBIE it is TIME to rock this. Everybody Is On Someones Hit List__Ah Sh…

Who is ROCKIN’ THE LIST? Everyone wants to trounce people with mental illness. I am not letting it go down like that T. BOBBIE. In this blog, you can “CLICK ON” and find out about your MENTAL MADNESS. Yeah, baby! KNICK-KNACK, PATTY-WACK GIVE A DOG A BONE! COMING FROM THE FLIP SIDE OF THE CHART these NEUROLOGICAL DISORDERS/CONDITIONS are NOT ALONE. Think about it. The only difference is all other behaviors are INTENTIONAL. EVERY behavior is viewed as INTENTIONAL until it has been ruled out as UNINTENTIONAL. So stop stereotyping, demeaning, blaming, and locking folks up for neurological disorders/conditions which affects the body’s NERVOUS SYSTEM. We are talking about the structure, biochemical, or electrical occurrences in the brain or the spinal cord. The nerves can be affected which leads back and forth to the brain and spinal cord. Once the nervous system has been COMPROMISED (the WORD JOHN BOEHNER CAN’T SAY OR DO) the result causes pain, confusion, muscle weakness, poor coordination, seizures, paralysis, loss of sensation, and changes your level of consciousness.

Please remember the BRAIN IS NOT A FUSE. You can replace a FUSE. Think of the BRAIN as the coordination of your senses, your smarty pants (intellect), and your nerves. This NEURON NETWORK BOARD can become overloaded if it is OPERATED UniMODAL. One side of the BRAIN is doing all the work and you do not have a lot of choices to put your BRAIN in another MODE. The BRAIN can become overloaded or get a short in the wiring system. We use the CIRCUIT BREAKER (your ELECTRICAL SWITCH), or the STOP/GO BUTTON to RESET YOUR BRAIN MANUALLY or put you on AUTOMATIC to keep from causing damage to your network so we can have the person up and running again. Your information has taken a different route. Has anyone had their BRAIN remove lately? Don’t answer that. It reminds me of the SEQUESTER SYNDROME. What was that? What a WORD!

I will keep this simple. You have to understand what happens when CHARLIE BROWN goes to kick the ball and he gets the same results. Whose behavior is INTENTIONAL? Whose behavior is UNINTENTIONAL? Have you ever thought that CHARLIE BROWN may not be able to kick the ball due to poor psycho-motor coordination? Simple athletics skills are not happening with people who have poor coordination. This would point to one of the characteristics of a NEUROLOGICAL DISORDER. Suppose LUCY has learned CHARLIE BROWN’S weakness and has decided to push his buttons. Does this sound like anyone in CONGRESS or the REPUBLICANS?

We just can’t go around bunching everything together. Got to be more careful! What is first? Certain mental conditions are not usually classified as neurological conditions and vice-versa. You have a spectrum of sciences which deals with neural and mental. These sciences address the thought, emotion, behavior, and how one’s personal/consciousness has been influenced. QUE SERA, SERA (WHATEVER WILL BE, WILL BE)! If your A… got a problem these are the questions you should be asking. DON’T BE AFRAID TO SEEK HELP. DON’T BE AFRAID TO ASK. YOU are NOT THE FIRST. YOU DEFINITELY WON’T BE THE LAST TO SEEK HELP.

1.) What is wrong with me?
2.) Where can I go to seek out help and get a diagnosis?
3.) How much testing is involved?
4.) What is this that I have? (after you get your results)
5.) What is my prognosis(rainy/sunny day forecast, prediction, get out the crystal ball,
or other prophecies)?
6.) What are the signs and symptoms of what you diagnosed me with?
7.) Is there a cure?
8.) Is there any treatment if there is no cure?
9.) How much research has been done?
10.) What is the success rate if any of me living a productive life?
11.) How will this affect my life over a period of TIME?
12.) Are there any other mental or physical illness that exist with what I have been
diagnosed with? (In my space at the same TIME and place/coexist)
13.) What are the risk factors for what I have?
14.) Will my treatment involve medication, therapy, surgery, neurorehabilitation,
habilitation (starting from scratch, step by step procedure, no assumption made
that I know but a straight-up teaching process with just the facts jack)? Gray me
up at a later date.
15.) What can I expect from treatment?
16.) How can I help myself if I get into a CRISIS?
17.) Is there a CRISIS INTERVENTION HOT-LINE?
18.) Where can I go and get a second opinion?
19.) Will my child/adult ever grow out of his/her diagnosis?
20.) Is this a disability that will improve or worsen over a period of TIME?
21.) Am I going to live or DIE?
22.) How much TIME? Hey! I am just asking because most people don’t want to know.
23.) What is all this going to cost?
24.) Who will help me pay for all of this?

BOTTOM-LINE: It can cost you your life if you don’t seek help. Early intervention would be great but if this is not the case, PLEASE CONTINUE ON YOUR JOURNEY to seek help.

T. BOBBIE there are many people who do not ask these questions especially coming from the FLIP SIDE OF THE CHART. People with neurological syndromes find it hard to initiate conversation and don’t know where to begin asking the WHO, WHAT, WHEN, WHERE and WHY questions. This is where the naive and trusting part takes over and the person with mental illness or has a neurological problem becomes the VICTIM and is easily VICTIMIZED. Their civil rights, human rights, and any other rights that are due are always violated. DR William BEGG (Bill), DR RICHARD FRIEDMAN, and many doctors across the nation understand why only 4% of people suffering from mental illness are not violent and so do I. PRISON IS NOT A TREATMENT CENTER, PEOPLE! EASE UP OFF THE BLAME DUDE. There are a lot of people who have a very short FUSE when it comes to the topic of MENTAL ILLNESS. OKAY, IT IS TIME FOR YOU TO CLICK ON and LEARN MORE.

Visit the following websites to help re-route your misinformation.

1.) http://www.ninds.nih.gov/health_and_medical/disorders/ (NATIONAL INSTITUTE OF NEUROLOGICAL CONDITIONS and DISORDERS) list from A-Z with over 295 major neurological disorders, symptoms, and syndromes that are frequently observed.
2.) http://www.nimh.nih.gov (THE NATIONAL INSTITUTE OF MENTAL HEALTH)
3.) WIKIPEDIA
4.) ICD10Data.com or ICD-11Data.com (MENTAL BEHAVIORAL and NEURODEVELOPMENTAL DISORDERS F01-F99)
5.) http://www.cdc.gov/ (CENTER FOR DISEASE CONTROL)
6.) http://www.helpguide.org
7.)http://surgeongeneral.gov/library/mentalhealth/chapter4/sec4.html#course
8.) http://www.who.int/topics/en/ WORLD HEALTH ORGANIZATION (WHO)
9.) http://www.surgeongeneral.gov (SURGEON GENERAL)
10.) http://www.hhs.gov (UNITED STATES DEPARTMENT OF HEALTH AND HUMAN SERVICES)
11.)WebMD
12.)http://www.who.int/mental_health/media/en/69.pdf

These are just a few sites to get the ball rolling and the next TIME T. BOBBIE I will share a list of the many books I have read over the years in this area of NEUROLOGICAL and MENTAL DISORDERS. It is strange how.GOV is hanging off these websites and the people in the GOVERNMENT aren’t clicking on. You know they are ROCKIN’ THE LIST. Every TIME we end our conversation I want to echo back what you always say to me. LOVE YA! LOVE YA! LOVE YA!

Getting Zach on the Right Track

Scene:  Sparky SPD (representing sensory processing disorder) and Nicky NLD (representing nonverbal learning disability) visit OWN Studio to help a friend get on the DSM5.  Zach is having extreme behavioral problems. Sparky SPD and Nicky NLD came to visit Oprah to see how they can help an old friend out. The conversation takes place in the green room and Oprah has stepped out for a studio break.

Nicky NLD:

Sparky sit down.  Stop touching everything. You are going to get us thrown out of the studio. I knew when I came here with you it was a bad idea. What did you have to eat?  You are all jacked up. Did you eat anything with sugar in it?  Put that down. You are on sensory overload.  Don’t make me call 1-800-Jesus Christ on you.

Sparky SPD:

Chill Nicky, Oprah won’t mind if we help ourselves and take a few souvenirs.

Nicky NLD:

Oprah has a deadline to meet and we are here to help get sensory processing disorder on the list.

Sparky SPD:

You are not on the list either.  As I recall you are not on the American Psychiatric Association (APA) list nor the International Classification of Diseases (ICD) list.  Are you on the Center for Disease Control for prevention list?

Nicky NLD:

No, I am not on any of those lists. Isolation is terrible and no recognition is even worse.  There is no validation and this could hang us out to dry. The APA is trying to throw Aspergers off the list and merge it with PDD-NOS. You know that diagnosis is just not enough of anything to rate being on the list.  If Aspergers vanishes we will not make the DSM5.

Sparky SPD:

Are you serious?

Nicky NLD:

I’m way more serious than Sally Savant “splinter skills”.

Sparky SPD:

What are splinter skills?

Nicky NLD:

Splinter skills are very unique skills that a person has that are totally unrelated to their life but they do them exceptionally well. Savants are noted for these skills. There are so many skills that savants can’t achieve but they should always be recognized and respected for what they can do. No one should ever take any credit away from a person who can achieve the smallest tasks. It messes with a persons self-esteem and self-confidence. For many years, not making the list has done the same to me. I am treated totally different from state agencies, insurance companies, schools and their districts.

Sparky NLD:

Nicky, I was reading your tweets and I did not know we had all that in common.

Nicky NLD:

I spelled it out. As long as people point it out or spell it out for me I don’t get so frustrated.  It was about 30 tweets. I gave brief definitions of some of the disorders. I did not want to cause confusion because a few of the disorders get mixed up. Sparky we share and have difficulty in the following areas: hypersensitivity, apraxia, dysgraphia, fine motor, severe coordination, hypotonia, developmental delays, developing friendships and relationships (social domain), self-esteem, self-confidence, speech and language development, dyspraxia and our nervous system is wrecked.

Sparky SPD:

Are you sure we don’t have the same Dad? We’ve got so much in common. You know I always liked the song Papa Was A Rolling Stone by the Temptations.

Nicky NLD:

Okay Sparky, shorty by nature, don’t make me mad. People don’t realize that when I get angry it could be for something that happened 2 or 3 days ago. It could be something that happened for 3 or 4 years ago or even longer. The doctors call it a manifestation of one’s behavior. I call it being pissed off for a very long time.

Sparky SPD:

What strategy do you use to keep from going ballistic?

Nicky NLD:

You need to go process with a person that you can trust – like a doctor or a therapist.

Sparky SPD:

I can get pretty angry.

Nicky NLD:

That is the best time to go to your doctor.  They can help level you out by talking it out. If you don’t want to talk you can look at the ceiling. If it is your doctor or therapist you are going to pay them regardless.  You might as well talk.

Sparky SPD:

I need a safe area like you. I use to think that your mom was a decorator. When you told me she put those rooms together to calm you down that was really cool.  I love the fountains, candles and the easy colors she chose to make it like a spa. Why did your mom take the doors off the rooms?

Nicky NLD:

I cannot tell where my body space is.  Removing the doors just kept me from bumping into them. The look on your face was priceless when I told you we were in the closet. You thought it was a music room. You asked me where do I keep my clothes. I told you that we were sitting on them. You didn’t have a clue the benches were storage chest. You know I have trouble with hanging my clothes on clothes hangers. I don’t need to get frustrated.  My family always figures out a way to help me work around something that gives me difficulty. They remind me it is no big deal. They teach me alternative methods by verbalizing and pointing out what it is I need to do. As I practice the skill more I learn it and I’m ready to move on. If you tell me to go clean the room. I need to know exactly where you need me to start. They will leave notes on the computer or a sticky note on top of the computer for me to find my information. It takes a lot of work but my family wants me to be successful without the pressure. They continue to teach because I learn by a step by step method. It is habilitation, not rehabilitation.

Sparky SPD:

Man, your mama acts like she is McGuyver or Inspector Gadget. You know our house is so cluttered and it looks like something out of Rag Magazine. You know my mom doesn’t do well with changes.

Nicky NLD:

Sparky, your mom may need to change to keep your behaviors from triggering. The clutter and having no order in your life could be part of the problem. I’m not trying to place the blame on your mom or your dad. If they don’t know when it is time for them to learn. They have so much hurt, guilt,  fear, and feelings of hopelessness. All this can be changed with empowering themselves with education and learning about sensory processing disorder.

Sparky SPD:

How does your mom manage her feelings?  My parents just seem so beat down by my behavior.

Nicky NLD:

My mom and the rest of my family educate themselves on the material. She said if it is nothing up to date, She would take action, bring the information up to date and create a new format for people to learn. She and the rest of my family understand that I have a neurological disorder with unintentional behaviors. A characteristic of NLD is anosognosia.

Due to the nature of my disability, I do not have the ability to recognize the seriousness of my own problem. So I would see my peers like I view myself, not having a problem. Bottom line Sparky, I can’t put myself in other’s shoes to show compassion, empathy, and support. Don’t be frightened, I have come a very long way. Emotions are hard to teach.

Sparky SPD:

Man, that is deep. So what did your mom do?  I feel like this is a seminar.

Nicky NLD:

My mom was diagnosed with breast cancer. She said every adversity does not have to have an adverse effect. I have a difficult time understanding fear. She said this was a good opportunity to teach fear and other emotions. She stated that people don’t like breaking themselves down to the lowest denominator. It makes them appear weak. She said she wanted the world to know how much they are taking for granted. Their adversity would give them a greater strength  She felt if you could write, spell and read… then do it.  She expressed her fears and pointed out fears of others. I did learn a lot. I still have a long way to go.

Sparky SPD:

It is time for me to make some serious changes and start surrounding myself, with positive people, and those who have my best interest at heart. I have got a lot to learn. If you don’t mind Nicky, do you take medicine?

Nicky NLD:

No, I have several coping skills and strategies that are taught by my family members to reduce the panic, anxiety, depression, and stress. Whenever I decide to go out to dinner or a movie, I go at a time when it is not crowded. I go to a place where there is less noise. I enjoy music. Maybe Zach can read the book Musiophilia by Oliver Sacks.  One of the neuropsychologists gave it to me. It is an excellent book. I tried not to overload myself on social events. I get tired and I rest in a room with white noise and low amber lighting.  Social events I attend there are 3 being the minimum and 5 being the maximum people around.  They are very knowledgeable of my unique abilities. I use scented candles for relaxation (mild scented). When I walk, I take a backpack loaded with books for deep pressure. I have a fanny pack with mints, a stress ball, and clay. If  I get anxious, I return to my safe area. If someone is angry with me it is explained to me that the person may not be ready to talk. I have the same option as that person. I am never placed in competitive sports.

Sparky SPD:

Nicky that is a lot. Will we ever grow out of this?

Nicky NLD:

We don’t grow out of this. We grow up with this. We just have to work harder.

Sparky SPD:

I like that Bose Bluetooth you are wearing. What kind of phone do you have? I got that new droid.

Nicky NLD:

I don’t have a phone.

Sparky SPD:

What!

Nicky NLD:

One day  I was at the mall with my brother and he started complaining about everyone on their cell phone talking to other people.  He was so agitated and began to point out people who had Bluetooth attachments.  I looked at him and asked if he knew if anyone was on the other end talking. You know I process out loud and this attachment would keep me in sync. He took me out to the Bose store and purchased it for me.  I wear it all the time. Everyone looks like me but there is no one on the other end of my Bluetooth.

Sparky SPD:

You are going to have the whole world with phone gear and attachments paranoid.

Nicky NLD:

I wonder how many people are laying down their phone gear and looking at others with phones crazy?

Sparky SPD:

You need to cut that out.  Where did Oprah go?

Nicky NLD:

It’s getting late.

Sparky SPD:

Should we leave her a note or that sweater you have chewed at the sleeve? Why you do that?

Nicky NLD:

Sometimes adults with developmental delays have a tendency to eat non-food items. This is called pica. It is mostly seen in children ages 1-6 and mentally challenged persons.

Sparky SPD:

Alrightee! Let’s leave a message for Zach and his family.

Nicky NLD:

We need to let you know that you are not alone. To his mom and dad hang in there and be strong. It would devastate me if my family gave up on me.

Sparky SPD:

You are right Nicky. I don’t always see eye to eye with my parents. I wouldn’t want to be isolated or rejected by them.

Nicky NLD:

A good book to read with your parents is The Explosive Child by Ross W.Greene Ph.D.: A New Approach for Understanding and Parenting Easily Frustrated, Chronically Inflexible Child. It would be good for you to have an oral motor grocery list. When you become anxious/nervous you will have things to munch and crunch on and non-food items for your body.  Learn about your sensory system which consists of Tactile System (skin,touch), Proprioceptive System (muscles,joints and tendons), Vestibular System (inner ear,balance up/down and left/right), Gustatory System and Oral Motor Input (mouth and tongue),Visual System(eyes) and Olfactory System (nose,smell). Learn what calms your sensory system and what alerts it.

Sparky SPD and Nicky NLD:

We wish you all the luck in the world. We hope this helps.  To the parents of Zach, hang in and don’t give up. You need each other.

Zach quality time with mom and dad reading, listening to music, singing and playing games will help. You need a safe environment with trusted adults and grand guardians. Thirty-two hugs a day might help and you could use a good teacher or a mentor. A national cheerleader could boost your self-esteem. Lots of love and a stable home will shoot you to the moon.

We are rooting for you.